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My Ongoing Process of Recovery or How I Found Life After Lupus Using Faster EFT
Years ago when I was a working registered nurse in charge of a psychiatric emergency department nights-not a low stress position, I started to have symptoms that didn’t fit arthritis or Any illness I was familiar with in my family’s history. I attributed them to age and stress but they intensified. I started seeing doctors and they told me they thought it was age or stress and gave me various medications for pain and to reduce my perception of stress. They couldn’t pinpoint a specific cause. I had intense pain, bone penetrating fatigue, migraines with neurologic features, and I had an episode of a seizure. After four or five physicians I asked an ER physician friend if he knew a good diagnostician. He sent me to my current physician. This man examined me ,took a decent history, and performed tests. He then said it was neither arthritis or stress and sent me to see a rheumatologist (a physician who specializes in autoimmune disorders). The first one said I had one of two disorders both undesirable; so I was sent to a second rheumatologist who said he was certain of the diagnosis. I was grateful for an answer but not for the one I received. My doctor told me it was Lupus and apologized looking grim. He then placed me on medications that would change my life. I was given Methylprenisolone, Plaquenil, and other medications to relieve the pain and control the migraines to a degree. The drugs Plaquenil and steroids are significant in that they they slow the disease but exact a cost in side effects and cumulative damage. The pain medications helped but they too had their drawbacks. I still had to work and manage it with minimal or no relief. I started to have other symptoms as the Lupus progressed, like difficulty swallowing and periods of “brain fog.” My supervisor was well known for not tolerating serious illness and soon found a reason to terminate my position. I was at that point sick and without many resources. I had a son to support and suddenly I wasn’t attractive as a new hire. I collected unemployment and took a job for a short time that stressed me even more; soon I had to apply for disability and found that it wasn’t too difficult to obtain with the illness I had. However, I went from a comfortable salary to scraping to get by This wasn’t my life plan. Soon the medications especially the steroids took their toll and I gained weight, lost the cartilage in my knees and had my first major surgery of a knee replacement. My doctor started to adjust my medications but the damage was done. A few years later while visiting my brother in Chicago I felt a sharp pain and a cracking and had a fracture of my spine. I flew back to Denver with the help of my best friend as I could barely mov e and was wearing a huge back brace made of metal. The next day after I saw the surgeon I was in the operating room. When I woke up the pain was less but constant. I worked at rehab but found I was a difficult time and was started on new bone building medications. They too had a cost and I ended up losing bone and teeth. I had to have several root canals, an extraction, and a scraping surgery on my upper jaw to remove diseased bone.
I was placed on bone building medications called Fosamax which was in class of drugs called Alendrates. They did build bone in the spine but had an unfortunate effect in some people called osteonecrosis which meant the bone in the jaw area was depleted to restore bone in other places. This happened to me and I was eventually in need of major dental procedures and oral surgery. I was then placed on a drug called Teriparatide which consisted of a daily injection and was very costly. These injections for about a year partially resolved the problem. I then started to lose cartilage in my knees and had injections into my knees and finally they stopped working and I had to have knee replacement surgery. I recovered from that surgery but it threw off my gait and I again faced back problems. I saw an orthopedic surgeon and then a chiropractor; then finally another orthopedic surgeon. By then I was in a wheelchair and would have consented to almost anything. It was then that I had a five hour long surgery on my spine implanting titanium, cadaver bone, and three fusions. After the surgery my left leg was paralyzed for a few weeks then function returned but not completely.
For a while I thought the worst was over and then the migraines intensified. They were frightening and I was sent to see an neurologist and then a second one. By then I was started on time release morphine to control the pain and told to rest. The doctor told me they were attempting to determine if I had damage to the arteries in my brain, a condition known as Lupus Vasculitis which could have led to many things. My best friend had just had a stroke and later died so I entertained alternative treatments. I went to You Tube and found a Dr. Inci Erkin working with a Lupus client who stated she was told she would not survive but was still alive and working with Dr. Erkin using EFT. I contacted Dr. Erkin and she urged me to try tapping to deal with the Lupus. So I searched for EFT training. I tried many things including Meta-Medicine, NLP, and even took EFT level 1 Professional Skills in Denver. By then I was having memory impairment and had difficulty remembering what to say as a set up statement. I was unable to reach much emotional depth and the attempts at tapping were pretty much futile. It wasn’t for me but I am certain that EFT helps many. At that point I worked with a Meta Medicine master with great but fleeting results. I then contacted someone in Faster EFT and was given two names of newly graduated practitioners. I contacted the one in the US and we began tapping. I was amazed at the emotional depth of the work and the ability to move things. I made changes and needed to learn more. One day my son was musing about life and stated that he had concerns that I would die from the awful migraines. That awoke an energy or determination that I would not surrender to Lupus. I took the Seven Day Quick Start and shortly after I saw the Las Vegas Level 1 training online and Laura Worley communicated that someone or more than one with Lupus were welcome to attend. The other women in my support group were not willing to do something as ridiculous as tapping. They were convinced a new drug was around the corner and they would be cured. I feverishly started to try to raise money by making Lupus Awareness Charms-little silver butterflies and beads. The sale was under whelming. I then started a Go Fund Me Appeal telling my story and asking for help to pay for a trip and hotel stay. In the end I was aided by people from the Faster EFT community as I had been seen as being out of the Lupus support groups. I flew to Las Vegas and was met by my roommate and she was there for her own reasons but was kind and helped me survive the week at Level 1 training. I was very ill when I arrived and had come to the decision that no matter what it took I would try to make it work. We were not able to secure rooms in the venue hotel and we had a walk and a shuttle ride to contend with. My left leg and lower spine refused to cooperate and eventually my roommate borrowed a wheelchair for me to make the trip over. It wasn't a good thing for either of us and I grateful for her help but hope I didn't make her process more complex. A couple days into training Robert Smith showed a video of a disabled woman who recovered and an interview with her husband followed. When I heard the husband speak about watching his wife deteriorate into illness I couldn't think and began to cry with no end in sight. Two practitioners escorted me out of the room and began tapping on me. I finally came back to myself and returned to the training. After that I learned to tap as I watched videos. The next day I was approached by one of the higher level practitioners told that Robert had arranged a crossfire session for me and would I be willing. I agreed, happy that I would have a better chance at recovering, although it was a new experience. When I went to the crossfire session I didn’t realize it would change my life. I went into a hotel room where two advanced practitioners waited and after introductions, signing a release, an intake the process started. I was challenged on my current beliefs about my illness and prognosis, and it was then I summoned the strength with the help of these two women to live. I refused to live with sickness and the chance of my demise from the awful migraines and the possibility of a vascular event. I left the room determined one day to be like one of these wonderful women and help someone else. I was in a state of mind I had never experienced before where my thoughts were shifting and the answers in my mind had changed. When I returned to the class a test was being distributed and I couldn’t think of the answers. Someone asked me where I had been and I responded that I had been in a crossfire session. The gratitude I felt was overpowering and I felt alive. As time went on I noticed that portions of the Lupus just dropped away. Robert Smith and I talked and I thanked him for all he had done as well as Dr. Fritz Miller-my friend and a man who knew my triggers. Robert Smith advised me that I needed to tap everyday and leave alone support groups with graphic depictions of sick people. I was ready to do almost anything to keep recovering. In February Fritz Miller called me and said its time to retake level 1. I told him it was crazy and I couldn’t afford it and then he hung up the phone. My son was standing near and said well if you don’t go that friend of yours will never talk to you again. I thought that now the had joined forces to make certain I learned Faster EFT. I called my doctor for my physical and asked him to decrease my medications and to discontinue some of them as I was feeling better ever since starting a new tapping therapy. My doctor asked if I was seeing a psychiatrist and I said no. I tried to explain but little was understood. Upon examining me he look puzzled as he said he could find signs of Lupus. He looked perplexed as I was supposedly a sick woman. He ordered several blood tests and in the next few days I left for OKC where the training was being held. It was winter and freezing cold and the flight was scary. After the weekend my mobile started to buzz and vibrate in the class. It did so for about three times-I had a voicemail stating no signs of Lupus could be found in my bloodwork. I was in a state of amazement and played the message for Fritz Miller to make certain I had a witness. After class we talked to Robert Smith and Dr. Eric Robins had come so we shared the information. I went into a transformational state of bliss and joy. I was free! It was Bastille Day and I ran from the prison! Robert Smith interviewed me and that night aired the interview. I had a chance to tell my story and let others know that help was real-recovery was possible. That night my iPhone vibrated, dinged, and messages poured in praising me and congratulating me. Also Jonah Robins repeatedly said “I love you Rose.” I told him I looked fat in the video and my hair was in a mess but he repeated the same phrase. I finally gave up. Who was this woman who worked such wonders? She wore my face but glowed! I was so excited that I left my winter coat at the hotel when I returned home. I didn’t really care. The following days I caught a cold that had gone around and called my doctor; he made certain to say it wasn’t Lupus related. This has been a big change and I am trying to build a practice and received a call from Fritz Miller about Level 2 in June. I turned him down as I had no paying clients yet and then the phone rang and it was Jonah Robins stating some people were coming together including Deirdre Maguire and Alan Combies to get me to Level 2. Then I was contacted by Eric Robins who also contributed-here we go again. The joy and love I feel have no description. Thank you Robert Smith. I have decided he is the genius. The journey is not over not in this life.